Donor Inclusion & Exclusion Criteria

Autism BrainNet’s inclusion criteria includes:

  • Individuals with a diagnosis or suspected diagnosis of autism spectrum disorder (ASD):
    • No age exclusions
    • With or without related health conditions
    • Genetic and idiopathic forms of ASD
  • Individuals with a genetic diagnosis linked to ASD, including but not limited to:
    • Angelman syndrome
    • Dup15q syndrome
    • Phelan-McDermid syndrome
    • Prader-Willi syndrome
    • Individuals with single gene mutations in autism risk genes and copy number variants listed in the SPARK Gene List with or without a diagnosis of ASD

Tissue from individuals with a genetic diagnosis is important because it may help to understand why a particular genetic condition leads to ASD in some cases but not in others.

  • Individuals without a diagnosis of ASD: 
    • Up to 50 years of age with no known serious neurologic or psychiatric conditions
    • Sudden unexplained death in epilepsy (SUDEP)
    • Sudden unexplained death in adolescents

This donation will benefit scientific studies by allowing the comparison of brain tissue from people with and without ASD.

Exclusion criteria (donors without a diagnosis of ASD):

    • Severe head trauma (traumatic or due to stroke)
    • Prolonged chemotherapy or radiation treatment prior to death
    • Known serious neurological condition such as Parkinson’s disease, Huntington’s disease, Alzheimer’s disease, or frontotemporal dementia
    • Known serious psychiatric diagnosis such as schizophrenia or bipolar disorder
    • Chronic, long-term alcohol or substance abuse
    • Drug overdose

For more information

    • To refer potential donors or for questions about the donation process, call Autism BrainNet at 877-333-0999We are available 24/7 to answer your questions.